Tuesday, July 16, 2013

One day at a time

Now that I have had an opportunity to put a couple of weeks together, I am understanding the final phase much better.  There is no secret like a special diet or vitamins or anything at all.  It is very simple. Everyday I will be getting a little worse than the day before.  The amount of decline may be very small but, there will a decline everyday.  When I talk about decline I am talking about a variety of different things.  Here is what has been going on lately.  Everyday I get more fatigued.  I don't need to sleep all the time, I just need to give my body a chance to gain some energy back.  It seems to take longer to recharge everyday.  My temperature is fluctuating more each day which means the amount of sweats I get is increasing.  Let me try to explain the "sweats" I get.  I can be sleeping, awake, moving or stationary and my body will do the same.  Its like someone is pouring water on my head.  I get what they call drenching sweats.  These get worse as each day passes.  My appetite will continue to get worse.  I will continue to lose weight.  These are the easy ones to deal with.  The one item that will be the toughest to deal with is the pain.  I have to keep an eye on pain meds everyday to make certain I am taking enough to stay ahead of the pain.  Unfortunately, I've been told that the actual pain will eventually outrun the benefits of the medication.  This is where Vic has her work cut out for her.  It is going to be her job to keep me as comfortable as possible until it is over.  God bless her!!
So in a nut shell, my decline is happening everyday and I have to accept that fact.  My job, with the help of everyone around me, is to stay as comfortable as possible and to be ready for the end. So far so good.  Oh yeah, time frame?  There is nothing set in stone.  Just accept the fact that I am getting worse not better and we all have to be ready.  Keep praying.

2 comments:

  1. We are still praying. God Bless you Chuck and Vic too. We love you and your faith is an inspiration.

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  2. Thoughts, prayers, and many happy memories of the Friday Night Lights of Pizza Hut softball are with you and Vic at this time. Right now remembering that you once brought a brand new baby boy, who would one day be an NFL longsnapper, to a game. At the Pizza Hut afterwards, you set him AND his baby seat on the table. Doubt that he would fit anymore!! Thank you for your inspiring blog!

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